My latest Real Life for Prima Baby...
When
Jenni and Ross McGill ‘s longed for baby was born 12 weeks early, all they
could do is live in hope that this tiny baby would make it...
We’d been
trying for a baby for a very long three years and were devastated that it just
didn’t seem to be happening for us. We opted for IVF and after one expensive
attempt failed, we decided to try detox; no caffeine, no alcohol and general
healthy living. Ross, my husband, was hugely supportive with this and we were
utterly delighted when we conceived naturally in November 2010.
I had some
spotting early on in the pregnancy so I’d been really anxious but when it came
to my 12 week scan all seemed perfect; we were overwhelmingly excited about
starting a family.
The
complications start
It was at
the 20-week scan that things changed. We were told that Freddie was smaller
than he should be for his gestation. Nobody was sure exactly why, although it was
thought it could be something to do with blood flow from the placenta, but his
growth would need to be very closely monitored via regular scans. Despite this
news, Ross and I were still thrilled basking in the thrilling prospect of the
new addition we’d be welcoming into our lives and tried to remain optimistic.
The scans
over the following month continued to show our baby was measuring very small;
he was in the bottom 5% percentile for foetus growth. When I was 25 weeks
pregnant the doctor insisted that from that point on I had to be scanned
meticulously twice a week. We were genuinely pleased that we were being given
such thorough attention but by now getting increasingly concerned. We were
given our first warning that it was likely our baby would be born early. His
growth rate was so slow it was felt he may actually have a better chance
outside the womb, where he could receive medical intervention directly. At this point I felt helpless, I was
advised to eat more protein and rest more, but little other information was
given about how I could help our baby.
Time to
come out
At a scan
three weeks later came the shattering news our baby needed to be delivered by
C-section immediately as his blood-flow was now severely restricted and both
him and myself were in danger. I called Ross at work in tears and he rushed to
the hospital – he’s a teacher and he literally had to just leave the classroom.
Our
emotions were all over the place. We were filled with anxiety about our baby of
course, but also about the logistics of the situation, about work and getting
prepared at home. Yet all this concern was coupled with a sense of joy at the thought
of meeting our baby, despite the complications. I was given a bed in the
hospital but there weren’t any incubators available; we were told after a
seven hour wait they’d found a bed and incubator in a hospital in Kent. This
was the nearest hospital with an incubator and the correctly trained staff
available. We live in North London and our minds were racing with worries. How
would we commute? Pick up clothes from home? Get to work? Costs? Our minds were
racing.
On Saturday
21st May 2011 at 17.42pm, our newborn premature baby boy Freddie was born.
He was 28‐weeks +2 days gestation, weighing just 730 grams (1lb 9ozs), smaller
than a bag of sugar and about 15cm long. The doctors plucked him out by one
leg! We were able to see him for just 30
seconds before he had to be taken away.
Nobody
really explains what prematurity means and what lies ahead. We weren’t prepared
at all. After a 2‐hour wait in recovery Ross was finally allowed to go and see
Freddie – I was still too poorly. He found this really hard, it was an
incredibly powerful experience, he was happy but overwhelmed by all that lay
ahead – it was hard to be alone. Along with Ross there was a team of 5 or 6
doctors standing next to Freddie. He said it was hard to hold back the tears. It was terribly difficult for him with the
medical professionals discussing his newborn son’s care – he felt so alone and
uncertain of what the future held. He also says he felt enormously proud of me
and, even amongst the uncertainty, delighted to be a Dad.
Around 9pm
the same evening, Ross wheel‐chaired me through the delivery ward, past other
Mums and babies, the sight of which made me cry instantly. It was enormously
emotional seeing the ‘normal’ families, when our journey looked to be much more
complicated. ?) We pushed through the doors of NICU, (Neonatal Intensive
Care Unit) which unbeknown to us
at this point, was to be a daily occurrence for the next 12 weeks. This first
time I saw him he was surrounded by doctors and covered in wires. Ross had to
hold me up as I was in shock and in pain from the Caesarean. He was so tiny and
fragile – his hand was a mere 3cm in length and we held and stroked it – just
about all the contact we were allowed at this stage.
It was a
very moving experience and utterly heart-wrenching. We felt so much that we
wanted to help him and to make everything OK, but in reality we knew his care
was in the hands of the doctors and nurses. We were so lucky that bonding
happened at this early stage; the second we could stroke his tiny hand.
Hospital
life
The 12
weeks in hospital was tough but the staff were brilliant, they answered
questions and showed great empathy and all thismade life manageable. Only
grandparents were allowed for the first three months, but as Freddie only has
one Grandma who did come to see us but who lives 200 miles away, we pretty much
faced every single day on our own. The staff were kind enough to allow us to
nominate Godparents to visit, so our closest friends came to see us when they
could, providing much needed encouragement and love.
Freddie was
so premature and had such a low-birthweight, that he was open to all sorts of
viruses. We had to wear gloves when touching him, use alcohol gel – everything
we could to keep our tiny baby germ-free. When we were told he had suspected
meningitis we felt totally distraught – he received a 3 week course of
antibiotics and thankfully all was well. As well as that he was born with
chronic lung disease (CLD, a condition that happens to some babies who
are born very early and means they need oxygen and rigorous protection against
chest infections (Bliss 2007). Freddie also had jaundice and needed a total of
4 blood transfusions due to low blood sugar and low red-blood cells. One of
Freddie’s other problems was hernias which is often an issue associated with
small, early baby boys as their muscle walls can be too thin. He’s now had
two operations for this at Great Ormand Street Hospital. [I’ve added about
expressing below]
We didn’t
get to see Freddie's face for weeks, as his eyes were protected from the lamps
with tiny glasses and his face was covered with tape holding the oxygen tubes
to his nose and mouth.
Holding
Freddie for the first time, when he was 16 days old,was very traumatic, not the
romantic cuddle every new mother dreams of, I had to be so careful with him as
he just felt so precious and delicate and of course he was still attached to
oxygen and wires so I had to be careful from that point of view. But as the wires
became less and the oxygen tubes were removed, the cuddles got better and
better. So much so that Ross and I would hardly let him go when visiting him in
hospital.
At home
After a
total of 82 days in hospital we were dying to bring him home and start being
‘proper’ parents – the day we came home was actually his due date – we called
this his “0th birthday”! In hospital we’d had some traumatic times;
all the equipment and scares about illness, and I’d been expressing milk
the whole time. He was too small and week, to breast feed, but desperately
needed the nutrients from my milk to help him grow. I also desperately needed
to help him, in the little way I could so I continued to express for a whole 7
months.
Since leaving hospital life
has been great. We didn't sleep a wink on the first night due to the sheer
excitement of having Freddie all to ourselves and sleeping in his own Moses
basket at home.. It was incredible to have unlimited cuddles and to not be
surrounded by beeping alarms on machines.
Of course,
the first few days were exhausting; there was night time feeds and we’d had the
oxygen he still needed for breathing installed and so we had to check that was
all working but actually although he was
technically a newborn he did sleep a good 3 hours at a time.sufficiently. There
was always the small seed of doubt at the back of our minds, that everything
might not be alright. It’s only been since getting into a more normal routine,
that we’ve realized how stressful it all been, from carrying Freddie to seeing
him in an incubator. Looking at an empty cot at home and not feeling his kick
any more – it was all so heart-wrenching.
We still
need many visits to the hospital for eye and development tests just to check
there’s nothing wrong. But Freddie is doing really well. He’s 9 months old now
and has been doing really well at all his checks. In early December,
Freddie returned to Barnet hospital for his Neurological Development
Assessment. This is a series of tests performed to record cognitive ability and
fine and gross motor skills. We were delighted to receive the report one month
later; it said that Freddie is developing normally for his corrected age (the
age from his due date).
I’m loving being a Mummy –
and Ross, a dad. We’ve got into our stride now and have established a routine.
We just love being at home together and doing activities that we’ve always
wanted to do with our child and we’ve wanted a child for so long.we can’t stop
smiling most of the time and life is amazing. His character and body are
growing and developing by the minute- he is a real smiler! I cuddle Freddie
every minute of every day now, every cuddle feels like a gift. We’ve been
through so much together but I'm much stronger now, the tears
come less and the smiles and laughter more and more every day.
The
furture…
We now feel enormously positive about the future for
Freddie. We had a fabulous Christmas with family and since the New Year Freddie
has continued to come on in leaps and bounds. He is now almost rolling over un-aided,
he is grasping objects with both hands and starting to eat larger quantities of
solids. He even nibbles on a rusk! It’s amazing to see him do the things
‘normal’ babies do and to reflect on how far he’s come.